My life was turned upside down when I was diagnosed with Lupus.
Ever since I was a kid, I always kind of had an issue with joint pain. But by the time I joined Mymee, things had gotten so bad that I was no longer working, no longer able to exercise, and I didn’t have the energy to do the things I really loved. It was like I was in a terrible cycle, the worse I felt, the more I gave up - which in turn contributed to even more fatigue and hopelessness.
I was not in a good place, that’s for sure.
My Personal Struggle with Lupus
I first learned what ‘autoimmunity’ meant when I was pretty young. I had juvenile arthritis and connective tissue disease, which are both considered autoimmune diseases. My doctor prescribed Methotrexate which fortunately helped a lot with the symptoms.
In my 20’s, I had plenty of energy and had a lot of physical strength. I was able to work 3 different physical labor-based jobs at once. But when I was 27, I had an operation for SVT and I also got a flu shot. I’m not really sure why, but my body went totally off the rails after that.
My joints swelled and were incredibly painful, my doctor used a term “polyarthralgias” to mean I had joint pain in several areas of my body. In addition, I had extreme fatigue, chest pain, shortness of breath, rashes and ulcers. I went to see a Rheumatologist who found that I had positive ANA, high dsDNA and increased inflammatory markers which contributed to getting a diagnosis of Systemic Lupus Erythematosus (or Lupus).
Following this diagnosis, my life was turned upside down. Most days, I was exhausted. On a really good day, I was able to take a short walk. Obviously, I couldn’t work steadily anymore at that point. I tried to volunteer a couple times a week, but after 2 or 3 hours, I would just be completely spent.
“In the case of Randy, a host of debilitating chronic symptoms improved with the elimination of his food triggers, supplement interventions, and by teaching him to understand and act on his body’s cues. He realized the impact diet and lifestyle habits had on his physical, mental, and emotional state. He successfully changed his lifestyle and was rewarded by no longer identifying as a “sick person”, becoming clear headed and productive.”
CHRISTY - MYMEE CERTIFIED HEALTH COACH
When I discovered Mymee, I was 315 pounds, and sick all the time. I was unable to work; suffering from chest pains, constant nausea, diarrhea, and difficulty moving and forming sentences. My goals going into the program were to regain energy so that I could exercise and lose weight and ultimately return to work.
“I am back to performing in plays again - last year, I would have never been able to handle the rehearsal schedule.”
How I feel now
Part of the success of Mymee for me, was that I started to clearly see the connection between triggers, my energy level and pain level. Within two weeks of starting the program, I noticed that my bowel movements were becoming more regular. Then, the next week, my nausea had improved. This was a huge win for me because I was used to feeling nauseous after every meal, which made my appetite erratic and probably led to some of my low energy issues.
It was around this point in the program that my interest and understanding of the underlying triggers really began to grow. I felt more and more motivated to make the positive changes that were being advised. It was such an amazing feeling to get off of the cycle of fatigue and depression and really feel like I was doing something for myself.
I liked that I could actually see my own data, it was helpful to look back and see how far I’d come. I could see that the structure of my day had changed - I was waking at 7:15 am, with no need for a nap throughout the day. I was walking regularly and I also tracked my productivity.